Wednesday Update

Well, I flew home bright and early this morning to spend time with my kids and take care of my home based business this weekend. Good flight! QUICK! So the update if from Kevin's phone conversations. The biggest news being, they got to leave the room adn go for a walk! YEAH! Let the wagon rides begin! Kevin said Daniel was just thrilled to be out! Daniel has been wanting to stand more and more. Still not walk, but stand. His legs are still really weak from not walking for over a week. But he stood for about 1 1/2 minutes today! he still has the On-Q tube in. Tomorrow morning it's coming out, we've been promised. (We heard that yesterday, too, though! I'll believe it when I DON'T see it! Har! Har! Har!....It's late and I am really tired...stupid jokes come out then! Sorry!) Anyhow, the dietician came in and talked to Kevin about Daniel's eating habits. She isnt' concerned at all about what he eats. he is getting the caloric intake. The nephologist is concerned about him going all night without a drink. The kidneys need to stay REALLY hydrated. Anyhow, I told kevin to tell him we'd get up in the night and give him drinks if we had to, if we could avoid the feeding tube. So we'll see about that one! They weighed him today and he has gained 1 1/2 pounds! That is INCREDIBLE for him! Especially since 2 days ago was his last weigh in....so 1 1/2 pounds in 2 days if AMAZING considering he doesn't eat what he's use to and things. We are excited! the kidneys are keeping the nutrients and he's starting to grow. The post transplant team nurse came in and talked to Kevin. She said Daniel can't play in any more lakes. Nothing that is standing water. Apparently the gross bacteria and things are in HUGE concentration and if he gets even a little bit of water in mouth (and spits it out) those germs would surely wreck havic on the kidney. So only oceans and rivers that the water is moving. No personal pools and only pools that we knwo are cleaned on a regular bases. I was raelly bummed about hearing that. We play out at Lake Lahontan ALL the time! So no more of that! But Kevin said they had a good day. He sat up more, almost at 90 degrees, so he could color and do a puzzle and things. So that is great! Daniel will be released probably on Saturday, Sunday at the latest. We are grateful because taht would be a 1 1/2 week stay after transplant and we were told 2-3 weeks, probably closer to 3. So hopefully no surprises pop up! So that is all that was reported to me! Thanks for reading and caring about our great little guy!