We found a USB chord in the car! Don't know where it came from! But we are glad to have found it and it's one that fits the camera! Anyhow, here are some pictures of Daniel. The first one is when we were in 3 West (that is just patient rooms) and were waiting for surgery! Daddy and Daniel enjoyed a few naps together in the bed.


This picture is of Daniel in his FAVORITE spot! THE WAGON! They have wagons to pull kids around in and Daniel learned really quick that if he was in a wagon we were going for a walk and going for a walk meant no one would poke, pick or squeeze him! So he liked to be in the wagon. This picture is RIGHT before we went down to surgery! Aunt Brenda took it.

This in Daniel in PICU. He has tubes coming out of him EVERYWHERE! But they prepared us for that. He looked SO good! Coloring was amazing! The tubes in the mouth came out about 11 pm. Breathing tube, and tubes to stomach and lungs that helped drain. Daniel decided to pull them out! He rested better and was breathing on his own....so they left them out. Those came out about 24-36 hours a head of schedule! :-)
This is the scar from his left kidney being taken out. It's about 4 inches long. They glued it shut!

This is the scar from his right kidney out and new one going in. IT'S HUGE! I haven't even seen the end down under the pad yet. So we estimate it's about 8-9 inches long. The tube coming down with the red fluid in it is the draining tube. The curled up brown one taped to his tummy is the On-Q which is a local anesthetic being constantly admininistered to that area. The other one is just an IV port.

This is one from today! He has, as you can see on his left arm, a brace so he can't bend his arm and reach up to pull anything out (they learned he's quick EVEN sedated). But when we came in this morning, our nurse today let us take the right one off so he could hold and put his blankie to his mouth! We appreciated that! So did Daniel!

I found Kelle today! She is doing REALLY good! Her scar is abou 4 inches long. She will be released on Sunday. Her family is coming to get her. She is going to get to walk tomorrow and will come down and see Daniel....so she says. It's pretty good walk from the Stanford Hospital over here to the pediatric hospital. (They are connected.) She is already eating solids. But doing really well. She is an angel and I wish everyone could meet her. Whenever people hear she is a non-related donor they are amazed because apparently that doesn't happen very often for the live donors. But of our 5 donors, 4 of them were that way, so we feel very blessed to know a lot of incredible people who would volunteer to do something like this for Daniel.
Today Daniel's labs are really good! Creatinine is at 0.2! NOT 4.0, but 0.2! That is where they should be! Dr. Talley said earlier today (about 5 pm ) that his kidneys are already 'being stupid' and dumping the potassium and phosphorus, so they have started supplimenting those into his IVs. Let the fun begin! So hopefully they will soon realize that they are to keep them and we'll be good! We are very grateful and blessed to be here! The staff has been amazing and very good with Daniel! They keep saying how GREAT he is doing and we love to hear that!

6 comments:
What a nice surprise to see pictures! Daniel is an amazing little man! We are holding you all close to our hearts. Hope all continues to go smoothly.
I sure miss seeing you at school!
Much love!
Daniel is still so cute even when he's covered in glue!
I'm not gonna lie- I LOVE seeing the pictures. It is so amazing and fascinating that this is even possible! Thank you for posting them and explaining! I love you all a ton! ;)
What amazing pictures. I loved the one with Daniel holding his blanket to his nose. It is way too sweet!
Lewis understood Daniel's need the comforting blankie and Connor was excited to see the picture of Daniel in the wagon. Thanks for the pictures! And WAY TO GO Daniel's new kidney!
Our thoughts and prayers are with you - still! Love, the Perkins family
He's so cute. I'm glad he's doing good. Take care!
Tessa
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