Daniel update

We haven't had an update on Daniel in a while. And since his year mark is coming up in 2 weeks, I thought I'd share! We found out that his last BK Virus lab came back negative! That is wonderful. The nurse said, "I can't believe his body fought it off because his leflunomide (the drug he is on for it) level is way too low!" (we have been trying to regulate that!) Then she said, "Wait, it doesn't surprise me....you're the praying family!" I think it's great that they remember all our little miracles have happened because we tell them it's all the prayers and fasting for Daniel. Anyhow, we have to have 2 negative labs to be considered BK Virus free! We go into tomorrow for another draw.

Daniel's grown leaps and bounds! He weighs about 38 1/2 pounds. Pre-transplant he was 26-28. I have to check next time we go over to CA. He has grown 3 inches since his birthday in December, so in 8 months. He is also officially the big brother of him and Sammy. It's great! He eats more than Sammy! that never happened!<\p>
His other blood levels are all doing good! We are hoping to get him off 2 of his meds here pretty soon. They are his iron and sodium bicarbonate. His kidney should be producing those, so hopefully soon it will 'smartin up' as the doctors tell us. Then he'll be down to only 4 meds! that would be great! We haven't gone to CA all summer as we have had many trips that we are spending our money on instead. There has been a lot of turn over in staff over there, so once school starts we are goign to call and get over there in September or October.