So I will start posting here for Daniel's updates to hit everyone. Today has been a pretty good day. We didn't get much sleep last night. Doctor's didn't make rounds until 2:30 pm as it being a skeleton crew with holiday weekend. Any rate, Daniel has started treatments of the anti-viral drug Aciclovir. It will prevent poxes from growing. He is having his 2nd dose right now. He has gotten about a dozen new poxes today. He has to be entirely scabbed over before we can go home. So hopefully Wednesday, Thursday.
The doctor's main concern right now is Varicella Pneumonia. Apparently the varicella can turn into that. Our next concern are other 'sleeping' viruses surfacing such as EBV, CMV and BKV. He'll be tested for those in the morning with the am labs.
He is in pretty good spirits. He does have a canker like sore (we are hoping it's a pox) on his bum-hole. It really hurts when he tries to poop, so he doesn't. It hurts every one in a while and he'll cry out. But he has been set up with some pretty amazing things from the Child Life program here. He has painted a wooden toy car, played Trouble & Connect Four that they gave us, currently coloring a black felt picture. He is a spoiled boy! I took pictures, but forgot the cord at home! Sorry!
thanks for all the calls, emails and prayers!
3 days ago

3 comments:
I hadn't heard - hope you guys get to come home soon! What a great way to start the new year :(
Our thoughts and prayers are with you, Amy! Good luck with everything!
Oh my!! Give Daniel lots of love from all of us. I have been out of the loop because of Joshua. Keep the blog updated!
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